LILY'S STORY

Just 2 weeks shy of her 1st birthday, Lily became the youngest child in the world diagnosed with SLC6A1. SLC6A1 is a rare genetic neurological disorder that causes epilepsy, developmental & intellectual delays, movement disorders, behavioral & psychiatric challenges, and profound medical needs. 

Lily is the sweetest, most snuggly girl you will ever meet. To know Lily will have a more difficult life than her big brother Leo is heartbreaking. Our girl is a fighter and we will do everything we can to fight for her future. 

Shortly after we received Lily's diagnosis, we found SLC6A1 Connect, a parent-run organization that is dedicated to funding vital medical research, advancing gene therapy & ASO therapy options, & connection SLC6A1 families around the world so we can all fight for a cure for our children together.

Gene therapy is currently in the human clinical trial period, which is HUGE, and will one day cure Lily and every child diagnosed with SLC6A1. 

Please join the Nelson family in supporting SLC6A1 Connect. Together, we can make a real difference.